A small, prospective, open-label trial found evidence of improved quality of life (QOL) and clinical outcomes among patients with treatment-resistant Sturge-Weber syndrome when they were treated with ...

EAST PROVIDENCE, R.I. (WPRI) — Next Saturday, Sept. 20, the Team Brielle RI and Sturge-Weber Foundation Awareness Walk will be held at Warwick City Park. The event was organized by the family of ...

When Danielle Gourdeau first gazed at newborn Jasmine on October 1, 2021, she noticed a spot on her daughter’s eye. At first, she didn’t worry about it. “They thought that maybe the mark about her eye ...

BALTIMORE, August 26, 2025— A newly published review from Kennedy Krieger Institute highlights major progress in developing biomarkers to improve the diagnosis and treatment of Sturge-Weber syndrome ...

Add Yahoo as a preferred source to see more of our stories on Google. Local mom Megan Lewis and son Tucker Lewis, 4, share their experiences with Sturge-Weber syndrome in this home in Harlem, Ga.

A new review from researchers at the Kennedy Krieger Institute outlines significant developments in biomarker research for Sturge-Weber syndrome (SWS), a rare neurological condition caused by a ...

COVENTRY, R.I. (WPRI) — Heather Coutu’s pregnancy was normal by all accounts. It wasn’t until her daughter Brielle was born that doctors knew something was wrong. That’s because Brielle had a port ...

Study conducted by Kennedy Krieger and Boston Children’s Hospital will impact treatment approach for infants with Sturge-Weber syndrome BALTIMORE, January 11, 2024—Researchers at Kennedy Krieger ...

YORK COUNTY, Pa. — After their daughter was diagnosed with a rare disease at birth, a York County family is celebrating her journey through treatment and it’s all thanks to a new medical breakthrough ...

The clinical and MRI findings are most consistent with Sturge-Weber syndrome. Sturge-Weber syndrome, also known as encephalofacial/encephalotrigeminal angiomatosis ...

MT. FREEDOM, N.J.--(BUSINESS WIRE)--As part of its “Roots to a Cure” fundraising campaign and Sturge-Weber Awareness Month, The Sturge-Weber Foundation (SWF), a 501(c)(3) non-profit organization with ...

Christian artist Jordan St. Cyr can’t help but rave about his little girl. “She became the miracle I didn't know I needed as a dad,” St. Cyr, 41, tells PEOPLE of his 5-year-old daughter Emery. “She is ...