News

When my newborn was diagnosed with cystic fibrosis, I was overwhelmed by a whirlwind of emotions — from grief and anger to love and hope.
My world was turned upside down in just a few weeks when a routine exacerbation quickly escalated into a lung transplant. I wasn’t prepared to tackle a transplant, but with time and support from my ...
Help make CF stand for Cure Found.
The Clinical Specimen Resource Library is intended to facilitate sharing of patient-derived specimens and lab-derived resources managed outside of the CF Foundation. This is designed to be a ...
Pain is a common issue for many people with cystic fibrosis. People with CF can experience a range of different types of pain from CF. Your CF care team can work with you to develop a plan to decrease ...
I spent years pushing my body as a swimmer — through college and even into my dream job as a Division I coach — without knowing I was battling cystic fibrosis all along.
Growing up with cystic fibrosis, I’ve had to do things a little differently than other kids my age. And while living with CF isn’t easy, I’ve been blessed with friends and family who support me.
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...
Grief is just one of the many emotions we all experience in life that makes us human. It is not linear. Some days you may feel like the world is caving in around you, while other days the weight is ...
Growing up with cystic fibrosis made me stubborn and determined to accomplish everything that I was told I could not do. At my elementary school track and field day, I would make sure to always choose ...
In my early 20s, I only had a handful of medications and treatments that made up my daily cystic fibrosis regimen. Now, at 45 -- and a few years past the median predicted survival age -- I take ...