Miracles happen when you least expect them. You manifest them for years, forget about them, give up on them completely, and then boom! You’re blessed with a miracle. In my case, this happened with a ...

This blog discusses substance misuse, abuse, and suicidal ideation. If you or someone you know is struggling with substance misuse, talk with your care team or visit samhsa.gov for support. As a child ...

My childhood was made up of adventures. Parasailing over the Gulf of Mexico, hot air balloon rides into the sunset, snorkeling in caves with stalactites hanging over head, and reaching the top of the ...

I was first diagnosed with cystic fibrosis earlier this year, at the age of 58. I am writing to share some thoughts I have about living with undiagnosed CF for the majority of my life. Looking back at ...

Dear Chair Cole, Ranking Member DeLauro, Chair Collins, and Vice Chair Murray: As Congress resumes its work on the annual spending bills, the 455 undersigned members of the Ad Hoc Group for Medical ...

I've always approached new medications with caution, concerned about potential side effects. That hesitation is why it took me several weeks to finally try Pulmozyme for the first time.

The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...

When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes. I thought I ...

Dr. Alexander Elbert is the senior director of the Patient Registry program at the Cystic Fibrosis Foundation. He received his degree in Chemical Engineering from Igor Sikorsky Kyiv Polytechnic ...

Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...

All my life with cystic fibrosis, I had always been told to eat more fat, more calories, and more food in general. Life was a never-ending battle to keep the pounds on. When I got sick, the first ...

One of five children (two full siblings and two half-siblings), Patti was diagnosed with cystic fibrosis at 6 months old. She holds an associate’s degree in business administration. The recipient of ...