While relocating to a new state, my family faced some unexpected hurdles. But with the incredible support of our community, we survived the journey.
I've always approached new medications with caution, concerned about potential side effects. That hesitation is why it took me several weeks to finally try Pulmozyme for the first time.
On behalf of the undersigned NAIC Consumer Representatives, we offer the attached report examining the impact of federal policy shifts on health insurance access and affordability. The report ...
The Cystic Fibrosis Foundation seeks to attract and develop junior faculty who will establish research careers in cystic fibrosis. The primary purpose of the K-Boost Award is to provide supplemental ...
It is your right to know everything about your role in a clinical trial. The informed consent process will help you judge whether a CF study is right for you. The informed consent process is ongoing ...
Every clinical trial must go through many layers of review, each intended to protect your safety. We go beyond what is required with additional layers of protection for CF clinical trials. At each ...
Have questions about cystic fibrosis clinical trials? The Clinical Trial Navigator is a person who can help you get the answers you need. 2 min read The Clinical Trial Navigator is a designated person ...
I never expected a simple musical hobby to introduce me to a global community of resilient and optimistic individuals. Each week, I now have the pleasure of interacting with those with CF around the ...
For decades, I’ve fought for my sons who were diagnosed late with cystic fibrosis and still face barriers to life-saving treatments. I continue to fight every day — taking no days off — because no ...
Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
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