I lived for decades struggling to breathe, adapting my life around what I thought were severe allergies. Then I was finally diagnosed with cystic fibrosis. With proper treatment and perseverance, I’ve ...

For years, I carried a collection of unexplained health issues that never quite added up. I didn’t cough, I didn’t wheeze, and nothing about me fit the traditional picture of cystic fibrosis. So when ...

I used to measure my life with cystic fibrosis and CF–related diabetes (CFRD) in numbers. Lung function. A1C. Blood sugars. Weight. Enzymes. Appointments. I learned early on that survival meant ...

Although I’m of Indian origin, I was born in South Korea, a country I associate with wonderful natural beauty and amazing cuisine. My early life unfolded against the vibrant backdrop of cherry ...

My family and I just made a huge move from Oklahoma to Oregon for my husband’s new job — our own Oregon Trail, but with meltdowns and caffeine instead of oxen and dysentery. Survival level: expert.

I remember the exact moment we realized Trikafta wasn’t the miracle drug we hoped it would be. Our 5-year-old daughter, Olivia, had become inconsolable and withdrawn, and was saying words that no ...

Today, in honor of World Oxygen Day (October 2), leading patient, provider, and professional organizations are amplifying the voices of people on supplemental oxygen to stress the critical importance ...

I wasn’t supposed to make it this far. I was born six weeks early, to parents who weren’t ready. They fought constantly, partied hard, and eventually split up. My sister went with my dad, and I stayed ...

BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...

When I tell people I’m training for a full Ironman competition, their reactions range from raised eyebrows to outright disbelief. It involves swimming 2.4 miles, biking 112 miles, then running a full ...

I would have argued the newborn screening result until my face turned blue. There was no way my baby had cystic fibrosis. My prenatal screening was negative, and I believed it showed that my son was ...